Did you see Susan Senator on MSNBC this morning? It is always great to see parents in the media. I wish they would have given her more time but thought she got as much as she could in during the limited time she had.
When asked what why she wrote her book Making Peace with Autism and what her message was, Susan said that parents needs to trust their gut and recognize that they are their child’s best expert. Exactly!! I said the same thing in my post Doing Your Own Clinical Trials.
We need more public awareness of the reality we live with daily. This is difficult because each of our children are unique. Susan’s Nat is not my Billy Ray or vice versa. Each of us has to evaluate what works for our own child as an individual and create a life that works for the whole family as well as our child with Autism or some other disability.
In the foreword to my book, Parenting Your Complex Child, (April 2006) Kate Crow, Genetic Counselor, says of the book “This book is so much more than a list of suggested responses to particular behaviors. It's a detailed guide to understanding your child and building a place in the world for him or her from the ground up.”
I think that we need to enable parents to build a life for their own child from the ground up. Hopefully those of us who are now sharing our stories with other parents can encourage parents that you can take your rightful place as leader of your child’s team.
Good job, Susan!!
Peggy Lou Morgan